PERN Data Availability (Jim Chamberlain)

What data are easy to procure across the world?

Category 1: Easy to Moderate – Visit reason, Emergency Diagnoses

Category 2: Moderate – Hospital Length of Stay, Hospital Diagnoses

Category 3: Chart Review required – Vital Signs, Medications, Laboratory Results, Pain Scores

Category 4: Data not collected in most sites – Race, Ethnicity, Preferred Language

What about Research Ethics?

  • Some ethics boards will not approve registries, only specific studies
  • Data security and a de-identification is a big consideration

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